2024 marks the 10th year of our ALZ Companions respite program, and we want to share a few numbers that reflect the impact it has made on the San Diego community up until this point. Over the course of the past decade, we’ve helped 504 families, many of whom have received multiple volunteers. There have been 661 ALZ Companion volunteers, adding up to 32,304 respite hours provided at a value of over $1.2 million. During the Covid-19 pandemic, virtual visits were set up and we were still able to help 45 families. Needless to say, our volunteers throughout this time have been nothing short of incredible and passionate, combining in a total of 6,425 hours trained to learn how to best assist San Diego County families.
In this piece we’re highlighting two of these wonderful volunteers – Jose & Yixin! Jose originally joined for a school service learning project in October 2023 and stayed because he had “earned some real hands-on experience… made [him] want to change [his] major into social work in hopes to do things more like this.” His experience as a guitar/ukelele teacher had previously exposed him a bit to memory loss, as he had a 75 year old student living with Alzheimer’s disease who opened up to Jose about how the lessons helped him stay centered amidst everything else changing.
Yixin joined us in April 2024 and was first interested because her husband is a researcher working on neurodegenerative diseases related to Alzheimer’s. She adds, “I realized how much help this group needs, and I felt that this was a very meaningful cause.” Read more about their experiences volunteering in this program:
What have caregivers told you about how they benefit from visits?
Jose: The caregiver I am currently with has told me that they have benefitted from me immensely physically and mentally. They can have a mental brain break and finally do their thing without a worry. They look forward to the time I am there since they know that they are in good hands.
Yixin: Caregivers have shared that my visits provide them with much-needed respite and peace of mind. They appreciate having someone they trust to spend time with their loved one, which allows them to take a break, run errands, or simply relax. They’ve also mentioned that the companionship has a positive impact on their loved ones, bringing joy and a sense of connection that benefits the whole family.
What’s a memorable experience you’ve had during a visit?
Jose: My most memorable experience is probably my first day. I was so nervous meeting the family and trying my best to present myself effectively. But the moment we talked, it felt like I was talking to a friend. The whole experience was very surreal and truly felt like I was making a personal connection.
Yixin: A memorable experience for me, one I clearly remember the date of, was on May 13th [2024], which was my second visit as a volunteer. That day, my client Janna and her husband Larry performed a duet. Janna is a skilled flute player (she’s in the early stages of Alzheimer’s, so she can still do many things normally), and Larry is talented on the piano, so they played a piece together. I was completely immersed in their beautiful music and perfect harmony. After the piece ended, Janna said something that struck me: “See, even among people with Alzheimer’s, there is still a smart guy.” Her optimism and sense of humor were deeply inspiring to me. Her spirit makes each visit a rejuvenating experience for me, motivating me to continue.
What knowledge or skills have you gained throughout your experiences that help you connect better now?
Jose: My communication skills have increased immensely. It forced me to be able to efficiently communicate with both the caregiver and the family which in turn has helped me communicate with my own circle better. It has taught me patience and empathy, far more than what school has taught me. It has taught me more about brain health and all the misconceptions of dementia.
Yixin: I’ve learned how important it is to be present in the moment and to truly engage with each client in a way that resonates with them. I’ve also gained insights into the emotional and psychological aspects of dementia, which has helped me to be more compassionate and supportive. Additionally, I’ve gained a deeper understanding of patience, empathy, and active listening, which are essential in building strong connections with clients. I’ve also learned more about the unique challenges faced by individuals with dementia, allowing me to approach each interaction with greater sensitivity and awareness.
What lessons have you taken away from volunteering with this demographic?
Jose: I have taken away so much from the demographic. I believe the biggest one is patience and empathy. Trying your best to understand their situation is the best thing I have learned here and where I can apply that to any demographic. I also now appreciate other elders because I have learned that they have lived a whole life.
Yixin: Volunteering with this demographic has taught me the importance of patience, compassion, and understanding. I’ve learned that even small acts of kindness can make a significant difference in someone’s life. It’s also shown me the resilience of the human spirit, as I’ve witnessed how people facing such challenges still find joy, humor, and connection. Most importantly, I’ve learned to appreciate the present moment and the value of simply being there for someone in need.
What would you say to someone wanting to volunteer as an ALZ Companion but is hesitant to take on the responsibilities?
Jose: Alzheimer’s San Diego has been amazing to me in every step of the way. I was nervous going into it as well but just know that you are in good hands with this organization. This is the best place to start as they will help you every step of the way and they will find a family that is a best fit for you.
Yixin: If you’re hesitant about volunteering as an ALZ Companion, remember that your presence can greatly improve someone’s life. Alzheimer’s San Diego provides thorough training and support to help you feel confident and prepared. Volunteering offers personal growth and flexibility, and even small efforts can make a big difference. We’re here to support you, so don’t hesitate to reach out with any concerns.
If you are interested in volunteering for the ALZ Companions Respite program, you can visit our volunteer page. For more general information on the program, click here or call our office at 858.492.4400.
By Braulio Ambriz
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Posted on August 29th, 2024
